We commemorate World Rare Disease Day with a very important announcement

From our foundation, we are very happy to announce that, with the support of the Catalan Society of Paediatrics, the Hospital Sant Joan de Déu and the Hospital Vall d’Hebron, we have managed to register in the Parliament of Catalonia a petition to increase the frequency of paediatric retinoblastoma check-ups and include these results in the clinical history.

This will mean a revolution in the early detection of retinoblastoma and other minority diseases with the same symptoms, such as congenital cataract and Coats disease.

Thanks to these actions, we are making progress in the early detection of retinoblastoma, a basic pillar in the survival and preservation of children’s eyes and vision.

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