News
The 19th World Rare Disease Day in Catalonia was successfully held (26/02/2026)
The 19th edition of World Rare Disease Day in Catalonia, under the slogan “More than you can imagine”, was held on 26 February, focusing on
Fundació La Nineta dels Ulls featured on El Matí de Catalunya Ràdio in the “Les Bones Causes” segment (25/02/2026)
We want to give a big THANK YOU to El Matí de Catalunya Ràdio for helping us raise awareness of our work by giving us
New accessories for the “Nixi and Retinoblastoma” plush toy (05/02/2026)
Fundació La Nineta dels Ulls presents new accessories for the “Nixi and Retinoblastoma” plush toy, a project created to support children with retinoblastoma throughout their
Fundació La Nineta dels Ulls participates in the first meeting of the European project SUPERHERO SCHOOL (04/02/2026)
First meeting of the new European project SUPERHERO SCHOOL: Imagining an Inclusive and Digital Education System Adapted to Students with Cancer Fundació La Nineta dels
La Nineta dels Ulls Foundation publishes the 2025 annual report and previews projects for 2026 (30/01/2026)
The La Nineta dels Ulls Foundation has published its 2025 annual report, a document that highlights the main achievements and projects carried out over the
La Nineta dels Ulls reaches more people thanks to Catalunya Ràdio and Flora Saura (22/01/2026)
The La Nineta dels Ulls Foundation would like to thank El Matí de Catalunya Ràdio for helping us make our work more visible and reach
The Sant Esteve Dance in La Fatarella Supports Retinoblastoma Research (15/01/2026)
Once again, the La Nineta dels Ulls Foundation would like to express our sincere gratitude to the La Fatarella Cancer Association and to everyone who
Solidarity and motorsport unite at the T.T. XMAS in support of retinoblastoma (10/01/2026)
On 9 and 10 January, Rocco’s Ranch (Montmeló) hosted the fifth edition of the T.T. XMAS, a unique solidarity motorsport event that brought together professional
Tarragona Provincial Council awards a grant to La Nineta dels Ulls Foundation to develop a mobile app for early detection of retinoblastoma
The Tarragona Provincial Council has awarded a grant of €5,256.35 to the La Nineta dels Ulls Foundation to support the development of a mobile application
Merry Christmas and Happy New Year: reflecting on a year of commitment, research and family support
From the La Nineta dels Ulls Foundation, we would like to wish all families, professionals, partners and supporting organizations season’s greetings and a happy new
La Nineta dels Ulls Foundation receives the Nixi Golden Badge (15/12/2025)
The La Nineta dels Ulls Foundation has been awarded the fifth and sixth Nixi Golden Badge, a distinction that recognizes the commitment, dedication and long-standing
Congress approves a Non-Legislative Proposal to strengthen early detection of retinoblastoma in pediatrics (11/12/2025)
The Health Committee of the Spanish Congress of Deputies has approved a Non-Legislative Proposal promoted by the La Nineta dels Ulls Foundation aimed at increasing
La Nineta dels Ulls Foundation delivers Nixi Kits at La Fe Hospital in Valencia to support children with retinoblastoma (29/11/2025)
This week, the La Nineta dels Ulls Foundation visited La Fe University and Polytechnic Hospital in Valencia to deliver the Nixi Kits from the “Nixi
La Nineta dels Ulls Foundation thanks Catalunya Ràdio and Nagore Folgado for spreading awareness of its work (21/11/2025)
Today, we want to express our gratitude to El Matí de Catalunya Ràdio for giving us space on LesBonesCauses, allowing our foundation to reach more
La Nineta dels Ulls Foundation to coordinate new European project for inclusive and digital education for students with cancer (23/11/2025)
The La Nineta dels Ulls Foundation has been selected by the European Union to coordinate an innovative new European project: “Superhero School: Imagining an inclusive
Nixi Kits arrive at Virgen de la Macarena Hospital to support children with retinoblastoma (15/11/2025)
This week, the Foundation travelled to Virgen de la Macarena Hospital in Seville to deliver the Nixi Kits, an innovative resource designed to support paediatric
Multiplier Event of the EUROPEAN DIGITAL CAMPS Project in Prades (18/10/2025)
During the patient, family, and expert meeting in Prades, the European Digital Camps multiplier event promoted digital inclusion for young people with retinoblastoma. During the
Iris Tió Supports La Nineta dels Ulls Foundation and Highlights the Patient Meeting in Prades (22/10/2025)
Iris Tió highlights the patient and family meeting in Prades and shows her willingness to support La Nineta dels Ulls Foundation. La Nineta dels Ulls
Celebrating 5 Years of the La Nineta dels Ulls Foundation (22/10/2025)
Celebrating 5 years of the La Nineta dels Ulls Foundation with research projects, family support programs, school awareness initiatives, and hundreds of solidarity events. This
5th Meeting of Patients, Families, and Experts in Retinoblastoma in Prades (17-19/10/2025)
Prades hosted the 5th meeting of patients, families, and experts in retinoblastoma, full of learning, games, talks, and emotional moments, strengthening bonds among families and
Participating in the Automation and Humanization in Ophthalmology Day at Vall d’Hebron
La Nineta dels Ulls Foundation participated as a speaker in the Automation and Humanization in Ophthalmology Day at Vall d’Hebron, giving patients a voice and
Little Big Heroes Return: La Nineta dels Ulls Foundation Celebrates the 5th Superheroines and Superheroes Day (06/10/2026)
“Superheroes of the Future: Imagining an Inclusive World” is this year’s theme This November, the La Nineta dels Ulls Foundation is celebrating the 5th edition
Fermí Fernández Gives Voice to La Nineta dels Ulls Foundation on Catalunya Ràdio’s LesBonesCauses (25/09/2025)
Collaboration for Visibility La Nineta dels Ulls Foundation recently participated in the #LesBonesCauses segment of El Matí de Catalunya Ràdio, with the collaboration of Fermí
La Nineta dels Ulls Foundation Delivers Nixi Kits at Vall d’Hebron Hospital as Part of the Nixi Project and Retinoblastoma (24/09/2025)
A Delivery with Meaning La Nineta dels Ulls Foundation recently visited Vall d’Hebron Hospital to make a new delivery of Nixi Kits as part of
La Nineta dels Ulls Foundation Receives FEDER Funding for Early Detection Project for Retinoblastoma with ICFO and Hospital Sant Joan de Déu (23/09/2025)
An Investment in Research and Innovation La Nineta dels Ulls Foundation is pleased to announce that it has received €25,000 in funding from the FEDER
La Nineta dels Ulls Foundation Attends International Conferences on Retinoblastoma in Oslo
A Global Scientific Meeting On September 12 and 13, La Nineta dels Ulls Foundation had the privilege of participating in two highly significant events for
Congress to Debate Protocols for the Early Detection of Retinoblastoma in Children (10/09/2025)
An initiative driven by the La Nineta dels Ulls Foundation The early detection of retinoblastoma in children is taking a decisive step forward in the
first transnational meeting of the European project
The first transnational meeting of the European project that we lead at the foundation “EUROPEAN DIGITAL CAMPS FOR THE INCLUSION OF YOUTH WITH RETINOBLASTOMA: spaces
We start collaboration with JCI
On January 13 we met with the President of JCI Catalonia (International Youth Chamber), Georgina Matamoros and with the President of JCI Terres de l’Ebre,
Global retinoblastoma study
An article has been published today in The Lancet Global Health by The Global Retinoblastoma Study Group. In this, the outcome of 4064 retinoblastoma patients
First European project of the Foundation!
We are in luck! We have been awarded the European project: “Involve, connect and teaching for inclusion: educational community facing childhood cancer”, which will be
New video for Retinoblastoma Week and Mother’s Day
Retinoblastoma week (from 8 to 14 May 2022) is a very important event where visibility is given to this eye cancer. To do our bit
We commemorate World Rare Disease Day with a very important announcement
From our foundation, we are very happy to announce that, with the support of the Catalan Society of Paediatrics, the Hospital Sant Joan de Déu
Launch of the project for the early detection of second cancers
On 15 February we met for the first time in person with the scientific team that will carry out the project for the early detection
We are part of FEDER, the Spanish Federation for Rare Diseases
From today, the Fundació La Nineta dels Ulls, becomes part of FEDER, the Spanish Federation of Rare Diseases. FEDER’s mission is to represent and defend
Recognition of the research work of Angel Montero’s team: publication of a new scientific article on retinoblastoma.
From the Foundation it is encouraging that researchers as powerful as the ones that we have in the scientific team are dedicated to this minority
Introducing the Foundation’s doll
On 16 September we presented our Foundation’s doll on Instagram. Ver esta publicación en Instagram Una publicación compartida de La Nineta dels Ulls (@fundacio_laninetadelsulls)
Guillermo Chantada elected President of the International Society of Paediatric Oncology.
Dr. Guillermo Chantada, member of our scientific committee, has been elected President of the International Society of Paediatric Oncology. This organisation’s mission is to promote
We have been chosen for the HP Charity Journey 2021 thanks to our App
The project initiated by the Fundació La Nineta dels Ulls with the collaboration of the Hospital de Sant Joan de Déu and the Universitat Rovira
First team meeting
We are really excited to let you know that the past Saturday 20th of March 2021 the team of La Nineta dels Ulls held its
Presentation of La Nineta dels Ulls Foundation
The time has come to present our project! The team of La Nineta dels Ulls Foundation started this stage with great enthusiam and hope to
Day for families with children with eye diseases
On February 27, the Sant Joan de Déu Hospital organizes the first day for families with children with eye diseases: More information in the following