{"id":21029,"date":"2026-10-27T11:23:34","date_gmt":"2026-10-27T11:23:34","guid":{"rendered":"https:\/\/fundaciolaninetadelsulls.org\/?p=21029"},"modified":"2026-10-27T11:23:34","modified_gmt":"2026-10-27T11:23:34","slug":"jornada-impact-genomica-cataluna","status":"publish","type":"post","link":"https:\/\/fundaciolaninetadelsulls.org\/es\/jornada-impact-genomica-cataluna\/","title":{"rendered":"La voz de los pacientes y las familias, presente en la Jornada Impact-Gen\u00f3mica en Catalu\u00f1a (09\/10\/2026)"},"content":{"rendered":"<p><img fetchpriority=\"high\" decoding=\"async\" class=\"alignnone size-medium wp-image-21027 aligncenter\" src=\"https:\/\/fundaciolaninetadelsulls.org\/wp-content\/uploads\/2026\/10\/Screenshot-2026-10-27-at-12-20-09-Instagram-225x300.png\" alt=\"\" width=\"225\" height=\"300\" srcset=\"https:\/\/fundaciolaninetadelsulls.org\/wp-content\/uploads\/2026\/10\/Screenshot-2026-10-27-at-12-20-09-Instagram-225x300.png 225w, https:\/\/fundaciolaninetadelsulls.org\/wp-content\/uploads\/2026\/10\/Screenshot-2026-10-27-at-12-20-09-Instagram.png 674w\" sizes=\"(max-width: 225px) 100vw, 225px\" \/><\/p>\n<p data-pm-slice=\"1 1 []\">La Fundaci\u00f3n La Nineta dels Ulls ha estado presente en la <strong>Jornada Impact-Gen\u00f3mica en Catalu\u00f1a<\/strong>, celebrada en el <strong>Hospital de Sant Pau<\/strong>, un encuentro dedicado a compartir conocimiento y reflexionar sobre los avances en gen\u00f3mica y su impacto en el \u00e1mbito de la salud.<\/p>\n<p><strong>Joan Carles Castillo<\/strong>, secretario de la Fundaci\u00f3n, particip\u00f3 en representaci\u00f3n de la <strong>Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras (FEDER)<\/strong>, formando parte de la mesa del <strong>bloque 3 de la jornada<\/strong>.<\/p>\n<p>Su participaci\u00f3n permiti\u00f3 aportar al debate <strong>la perspectiva de los pacientes y las familias<\/strong>, poniendo en valor la importancia de incorporar sus necesidades, experiencias y expectativas ante los avances que ofrece la gen\u00f3mica.<\/p>\n<p>La medicina gen\u00f3mica abre nuevas oportunidades en \u00e1mbitos como el diagn\u00f3stico, la prevenci\u00f3n y la personalizaci\u00f3n de la atenci\u00f3n sanitaria. En este contexto, es esencial que el desarrollo y la incorporaci\u00f3n de estas nuevas herramientas vayan acompa\u00f1ados de la participaci\u00f3n activa de las personas afectadas y sus familias.<\/p>\n<p>Desde la Fundaci\u00f3n La Nineta dels Ulls seguimos participando en espacios de conocimiento y debate que permitan <strong>hacer presente la voz de los pacientes y avanzar hacia una atenci\u00f3n sanitaria m\u00e1s participativa y centrada en las personas<\/strong>.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>La Fundaci\u00f3n La Nineta dels Ulls ha estado presente en la Jornada Impact-Gen\u00f3mica en Catalu\u00f1a, celebrada en el Hospital de Sant Pau, un encuentro dedicado a compartir conocimiento y reflexionar sobre los avances en gen\u00f3mica y su impacto en el \u00e1mbito de la salud. Joan Carles Castillo, secretario de la Fundaci\u00f3n, particip\u00f3 en representaci\u00f3n de [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center 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center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[23],"tags":[],"class_list":["post-21029","post","type-post","status-publish","format-standard","hentry","category-noticias"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>La voz de los pacientes y las familias, presente en la Jornada Impact-Gen\u00f3mica en Catalu\u00f1a (09\/10\/2026) | La Fundaci\u00f3n participa en la Jornada Impact-Gen\u00f3mica en Catalu\u00f1a<\/title>\n<meta name=\"description\" content=\"La Fundaci\u00f3n La Nineta dels Ulls participa en la Jornada Impact-Gen\u00f3mica en Catalu\u00f1a para dar voz a los pacientes y las familias ante los avances en gen\u00f3mica.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, 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