{"id":19077,"date":"2025-06-30T00:00:00","date_gmt":"2025-06-30T00:00:00","guid":{"rendered":"https:\/\/fundaciolaninetadelsulls.org\/la-fundacion-presente-en-el-seminario-europeo-ern-eye-sobre-retinoblastoma\/"},"modified":"2025-07-07T12:29:58","modified_gmt":"2025-07-07T12:29:58","slug":"la-fundacion-presente-en-el-seminario-europeo-ern-eye-sobre-retinoblastoma","status":"publish","type":"post","link":"https:\/\/fundaciolaninetadelsulls.org\/es\/la-fundacion-presente-en-el-seminario-europeo-ern-eye-sobre-retinoblastoma\/","title":{"rendered":"La Fundaci\u00f3n, presente en el seminario europeo ERN-EYE sobre retinoblastoma"},"content":{"rendered":"<p><img fetchpriority=\"high\" decoding=\"async\" class=\"alignnone size-medium wp-image-11964 aligncenter\" src=\"https:\/\/fundaciolaninetadelsulls.org\/wp-content\/uploads\/2025\/07\/Screenshot-2025-06-30-at-07-04-51-Instagram-300x300.png\" alt=\"\" width=\"300\" height=\"300\" \/><\/p>\n<p data-start=\"227\" data-end=\"453\">La presidenta de la <strong data-start=\"253\" data-end=\"286\">Fundaci\u00f3n La Nineta dels Ulls<\/strong> particip\u00f3 como ponente en el seminario internacional <strong data-start=\"340\" data-end=\"367\">ERN-EYE: Retinoblastoma<\/strong>, junto al <strong data-start=\"378\" data-end=\"398\">Dr. Jaume Catal\u00e0<\/strong>, la <strong data-start=\"403\" data-end=\"426\">Dra. Adela Escudero<\/strong> y la <strong data-start=\"432\" data-end=\"452\">Dra. Mar\u00eda Mu\u00f1oz<\/strong>.<\/p>\n<p data-start=\"455\" data-end=\"831\">Este seminario forma parte de la actividad divulgativa de <strong data-start=\"516\" data-end=\"527\">ERN-EYE<\/strong>, la <strong data-start=\"532\" data-end=\"595\">Red Europea de Referencia sobre enfermedades oculares raras<\/strong>, que trabaja para mejorar el diagn\u00f3stico, el tratamiento y la atenci\u00f3n especializada en m\u00e1s de <strong data-start=\"691\" data-end=\"734\">900 patolog\u00edas oculares poco frecuentes<\/strong>. Actualmente, esta red conecta a profesionales y entidades de <strong data-start=\"797\" data-end=\"830\">24 pa\u00edses de la Uni\u00f3n Europea<\/strong>.<\/p>\n<p data-start=\"833\" data-end=\"1083\">Durante el webinar se abordaron aspectos m\u00e9dicos, gen\u00e9ticos y psicosociales del retinoblastoma, as\u00ed como la importancia de la <strong data-start=\"962\" data-end=\"982\">detecci\u00f3n precoz<\/strong> y del <strong data-start=\"989\" data-end=\"1032\">acompa\u00f1amiento emocional a las familias<\/strong>, un eje central en la misi\u00f3n de nuestra Fundaci\u00f3n.<\/p>\n<p data-start=\"1085\" data-end=\"1355\">Poder compartir espacio con referentes cl\u00ednicos y cient\u00edficos europeos es un reconocimiento a la labor que realizamos desde el \u00e1mbito social, y refuerza la necesidad de una atenci\u00f3n multidisciplinar y coordinada en enfermedades poco frecuentes como el retinoblastoma.<\/p>\n<p data-start=\"1357\" data-end=\"1562\">\u00a0Puedes consultar m\u00e1s informaci\u00f3n sobre el seminario en la <a href=\"https:\/\/www.ern-eye.eu\/es\/ern-eye-webinar-retinoblastoma\/\">web oficial de ERN-EYE<\/a><\/p>\n<p data-start=\"1564\" data-end=\"1701\">Seguimos trabajando, desde todos los \u00e0mbitos, para dar visibilidad, apoyo y esperanza a las familias que conviven con esta enfermedad.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>La presidenta de la Fundaci\u00f3n La Nineta dels Ulls particip\u00f3 como ponente en el seminario internacional ERN-EYE: Retinoblastoma, junto al Dr. Jaume Catal\u00e0, la Dra. Adela Escudero y la Dra. Mar\u00eda Mu\u00f1oz. Este seminario forma parte de la actividad divulgativa de ERN-EYE, la Red Europea de Referencia sobre enfermedades oculares raras, que trabaja para mejorar [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":16921,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[23],"tags":[],"class_list":["post-19077","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-noticias"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.4 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>La Fundaci\u00f3n, presente en el seminario europeo ERN-EYE sobre retinoblastoma | Fundaci\u00f3 La Nineta dels Ulls<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/fundaciolaninetadelsulls.org\/es\/la-fundacion-presente-en-el-seminario-europeo-ern-eye-sobre-retinoblastoma\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"La Fundaci\u00f3n, presente en el seminario europeo ERN-EYE sobre retinoblastoma | Fundaci\u00f3 La Nineta dels Ulls\" \/>\n<meta property=\"og:description\" content=\"La presidenta de la Fundaci\u00f3n La Nineta dels Ulls particip\u00f3 como ponente en el seminario internacional ERN-EYE: Retinoblastoma, junto al Dr. Jaume Catal\u00e0, la Dra. 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