{"id":18402,"date":"2023-05-30T00:00:00","date_gmt":"2023-05-30T00:00:00","guid":{"rendered":"https:\/\/fundaciolaninetadelsulls.org\/semana-mundial-del-retinoblastoma\/"},"modified":"2025-07-07T12:29:18","modified_gmt":"2025-07-07T12:29:18","slug":"semana-mundial-del-retinoblastoma","status":"publish","type":"post","link":"https:\/\/fundaciolaninetadelsulls.org\/es\/semana-mundial-del-retinoblastoma\/","title":{"rendered":"Semana Mundial del retinoblastoma"},"content":{"rendered":"

\"\"<\/p>\n

Del 14 al 20 de mayo se celebr\u00f3 la Semana Mundial del retinoblastoma. Una semana que la Fundaci\u00f3n program\u00f3 una serie de actividades para difundir y concienciar sobre el retinoblastoma.<\/p>\n

Durante la semana presentamos diferentes v\u00eddeos de personas famosas en las redes: Pilarin Bay\u00e9s<\/a> habl\u00f3 del retinoblastoma mientras dibujaba un patufet. Roger March<\/a> (miembro del equipo de la Fundaci\u00f3) cont\u00f3 su historia y su vinculaci\u00f3n con la fundaci\u00f3n, Quim Masferrer<\/a> tambi\u00e9n nos hizo un v\u00eddeo animando a la gente a colaborar, Xevi Verdaguer<\/a> lo hizo un hablante de la detecci\u00f3n, la asociaci\u00f3n Retinostop nos cedi\u00f3 su video sobre la protesis<\/a> y cerramos la semana Mundial con el v\u00eddeo de las madres<\/a>.<\/p>\n

El martes y el mi\u00e9rcoles se estrenaron las NDUTalks. El martes 3 testigos adultos, Roger, Anna y Martin explicaron su experiencia vital y la compartieron con todas las familias que se inscribieron en las charlas. Por otra parte, el mi\u00e9rcoles tuvimos la charla de las expertas con la Dra. Esther Casas, la especialista Child Life<\/a> Helena Escoda y la madre experta Rhandal Skrt. Fueron unas jornadas muy enriquecedoras y en las que se cre\u00f3 un ambiente muy agradable entre todas las familias.<\/p>\n

Seguro que estas NDUTalks son s\u00f3lo el inicio de un ciclo que ser\u00e1 muy interesante seguir.<\/p>\n","protected":false},"excerpt":{"rendered":"

Del 14 al 20 de mayo se celebr\u00f3 la Semana Mundial del retinoblastoma. Una semana que la Fundaci\u00f3n program\u00f3 una serie de actividades para difundir y concienciar sobre el retinoblastoma. Durante la semana presentamos diferentes v\u00eddeos de personas famosas en las redes: Pilarin Bay\u00e9s habl\u00f3 del retinoblastoma mientras dibujaba un patufet. Roger March (miembro del […]<\/p>\n","protected":false},"author":1,"featured_media":18399,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"default","ast-site-content-layout":"","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center 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