{"id":21031,"date":"2026-10-27T11:28:51","date_gmt":"2026-10-27T11:28:51","guid":{"rendered":"https:\/\/fundaciolaninetadelsulls.org\/?p=21031"},"modified":"2026-10-27T11:28:51","modified_gmt":"2026-10-27T11:28:51","slug":"impact-genomics-catalonia-conference","status":"publish","type":"post","link":"https:\/\/fundaciolaninetadelsulls.org\/en\/impact-genomics-catalonia-conference\/","title":{"rendered":"The Voice of Patients and Families at the Impact Genomics Conference in Catalonia (09\/10\/2026)"},"content":{"rendered":"<p><img fetchpriority=\"high\" decoding=\"async\" class=\"alignnone size-medium wp-image-21026 aligncenter\" src=\"https:\/\/fundaciolaninetadelsulls.org\/wp-content\/uploads\/2026\/10\/Screenshot-2026-10-27-at-12-20-09-Instagram-225x300.png\" alt=\"\" width=\"225\" height=\"300\" srcset=\"https:\/\/fundaciolaninetadelsulls.org\/wp-content\/uploads\/2026\/10\/Screenshot-2026-10-27-at-12-20-09-Instagram-225x300.png 225w, https:\/\/fundaciolaninetadelsulls.org\/wp-content\/uploads\/2026\/10\/Screenshot-2026-10-27-at-12-20-09-Instagram.png 674w\" sizes=\"(max-width: 225px) 100vw, 225px\" \/><\/p>\n<p data-pm-slice=\"1 1 []\">Fundaci\u00f3 La Nineta dels Ulls took part in the <strong>Impact Genomics Conference in Catalonia<\/strong>, held at <strong>Hospital de Sant Pau<\/strong>, an event focused on sharing knowledge and discussing advances in genomics and their impact on healthcare.<\/p>\n<p><strong>Joan Carles Castillo<\/strong>, Secretary of the Foundation, participated on behalf of the <strong>Spanish Federation for Rare Diseases (FEDER)<\/strong> as a member of the panel in <strong>Block 3 of the conference<\/strong>.<\/p>\n<p>His participation helped bring <strong>the perspective of patients and families<\/strong> into the discussion, highlighting the importance of considering their needs, experiences and expectations as genomic medicine continues to advance.<\/p>\n<p>Genomic medicine is opening up new opportunities in areas such as diagnosis, prevention and personalised healthcare. In this context, it is essential that the development and implementation of these new tools go hand in hand with the active participation of patients and their families.<\/p>\n<p>At Fundaci\u00f3 La Nineta dels Ulls, we remain committed to participating in forums for knowledge exchange and discussion that <strong>ensure the voices of patients are heard and contribute to more participatory, person-centred healthcare<\/strong>.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Fundaci\u00f3 La Nineta dels Ulls took part in the Impact Genomics Conference in Catalonia, held at Hospital de Sant Pau, an event focused on sharing knowledge and discussing advances in genomics and their impact on healthcare. Joan Carles Castillo, Secretary of the Foundation, participated on behalf of the Spanish Federation for Rare Diseases (FEDER) as [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[24],"tags":[],"class_list":["post-21031","post","type-post","status-publish","format-standard","hentry","category-news"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>The Voice of Patients and Families at the Impact Genomics Conference in Catalonia (09\/10\/2026) | Fundaci\u00f3 La Nineta dels Ulls at Impact Genomics Catalonia<\/title>\n<meta name=\"description\" content=\"Fundaci\u00f3 La Nineta dels Ulls takes part in the Impact Genomics Conference in Catalonia, bringing the perspective of patients and families to genomic healthcare.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/fundaciolaninetadelsulls.org\/en\/impact-genomics-catalonia-conference\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"The Voice of Patients and Families at the Impact Genomics Conference in Catalonia (09\/10\/2026) | Fundaci\u00f3 La Nineta dels Ulls at Impact Genomics Catalonia\" \/>\n<meta property=\"og:description\" content=\"Fundaci\u00f3 La Nineta dels Ulls takes part in the Impact Genomics Conference in Catalonia, bringing the perspective of patients and families to genomic healthcare.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/fundaciolaninetadelsulls.org\/en\/impact-genomics-catalonia-conference\/\" \/>\n<meta property=\"og:site_name\" content=\"Fundaci\u00f3 La Nineta dels Ulls\" \/>\n<meta property=\"article:published_time\" content=\"2026-10-27T11:28:51+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/fundaciolaninetadelsulls.org\/wp-content\/uploads\/2026\/10\/Screenshot-2026-10-27-at-12-20-09-Instagram.png\" \/>\n\t<meta property=\"og:image:width\" content=\"674\" \/>\n\t<meta property=\"og:image:height\" content=\"899\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"admin\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"admin\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"The Voice of Patients and Families at the Impact Genomics Conference in Catalonia (09\/10\/2026) | Fundaci\u00f3 La Nineta dels Ulls at Impact Genomics Catalonia","description":"Fundaci\u00f3 La Nineta dels Ulls takes part in the Impact Genomics Conference in Catalonia, bringing the perspective of patients and families to genomic healthcare.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/fundaciolaninetadelsulls.org\/en\/impact-genomics-catalonia-conference\/","og_locale":"en_US","og_type":"article","og_title":"The Voice of Patients and Families at the Impact Genomics Conference in Catalonia (09\/10\/2026) | Fundaci\u00f3 La Nineta dels Ulls at Impact Genomics Catalonia","og_description":"Fundaci\u00f3 La Nineta dels Ulls takes part in the Impact Genomics Conference in Catalonia, bringing the perspective of patients and families to genomic healthcare.","og_url":"https:\/\/fundaciolaninetadelsulls.org\/en\/impact-genomics-catalonia-conference\/","og_site_name":"Fundaci\u00f3 La Nineta dels Ulls","article_published_time":"2026-10-27T11:28:51+00:00","og_image":[{"width":674,"height":899,"url":"https:\/\/fundaciolaninetadelsulls.org\/wp-content\/uploads\/2026\/10\/Screenshot-2026-10-27-at-12-20-09-Instagram.png","type":"image\/png"}],"author":"admin","twitter_card":"summary_large_image","twitter_misc":{"Written by":"admin","Est. reading time":"2 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/fundaciolaninetadelsulls.org\/en\/impact-genomics-catalonia-conference\/#article","isPartOf":{"@id":"https:\/\/fundaciolaninetadelsulls.org\/en\/impact-genomics-catalonia-conference\/"},"author":{"name":"admin","@id":"https:\/\/fundaciolaninetadelsulls.org\/en\/#\/schema\/person\/3eccaf2a549ed72f66aa1d01ff3f5a1b"},"headline":"The Voice of Patients and Families at the Impact Genomics Conference in Catalonia (09\/10\/2026)","datePublished":"2026-10-27T11:28:51+00:00","mainEntityOfPage":{"@id":"https:\/\/fundaciolaninetadelsulls.org\/en\/impact-genomics-catalonia-conference\/"},"wordCount":184,"publisher":{"@id":"https:\/\/fundaciolaninetadelsulls.org\/en\/#organization"},"image":{"@id":"https:\/\/fundaciolaninetadelsulls.org\/en\/impact-genomics-catalonia-conference\/#primaryimage"},"thumbnailUrl":"https:\/\/fundaciolaninetadelsulls.org\/wp-content\/uploads\/2026\/10\/Screenshot-2026-10-27-at-12-20-09-Instagram-225x300.png","articleSection":["News"],"inLanguage":"en-US"},{"@type":"WebPage","@id":"https:\/\/fundaciolaninetadelsulls.org\/en\/impact-genomics-catalonia-conference\/","url":"https:\/\/fundaciolaninetadelsulls.org\/en\/impact-genomics-catalonia-conference\/","name":"The Voice of Patients and Families at the Impact Genomics Conference in Catalonia (09\/10\/2026) | Fundaci\u00f3 La Nineta dels Ulls at Impact Genomics Catalonia","isPartOf":{"@id":"https:\/\/fundaciolaninetadelsulls.org\/en\/#website"},"primaryImageOfPage":{"@id":"https:\/\/fundaciolaninetadelsulls.org\/en\/impact-genomics-catalonia-conference\/#primaryimage"},"image":{"@id":"https:\/\/fundaciolaninetadelsulls.org\/en\/impact-genomics-catalonia-conference\/#primaryimage"},"thumbnailUrl":"https:\/\/fundaciolaninetadelsulls.org\/wp-content\/uploads\/2026\/10\/Screenshot-2026-10-27-at-12-20-09-Instagram-225x300.png","datePublished":"2026-10-27T11:28:51+00:00","description":"Fundaci\u00f3 La Nineta dels Ulls takes part in the Impact Genomics Conference in Catalonia, bringing the perspective of patients and families to genomic healthcare.","breadcrumb":{"@id":"https:\/\/fundaciolaninetadelsulls.org\/en\/impact-genomics-catalonia-conference\/#breadcrumb"},"inLanguage":"en-US","potentialAction":[{"@type":"ReadAction","target":["https:\/\/fundaciolaninetadelsulls.org\/en\/impact-genomics-catalonia-conference\/"]}]},{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/fundaciolaninetadelsulls.org\/en\/impact-genomics-catalonia-conference\/#primaryimage","url":"https:\/\/fundaciolaninetadelsulls.org\/wp-content\/uploads\/2026\/10\/Screenshot-2026-10-27-at-12-20-09-Instagram-225x300.png","contentUrl":"https:\/\/fundaciolaninetadelsulls.org\/wp-content\/uploads\/2026\/10\/Screenshot-2026-10-27-at-12-20-09-Instagram-225x300.png"},{"@type":"BreadcrumbList","@id":"https:\/\/fundaciolaninetadelsulls.org\/en\/impact-genomics-catalonia-conference\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/fundaciolaninetadelsulls.org\/en\/"},{"@type":"ListItem","position":2,"name":"The Voice of Patients and Families at the Impact Genomics Conference in Catalonia (09\/10\/2026)"}]},{"@type":"WebSite","@id":"https:\/\/fundaciolaninetadelsulls.org\/en\/#website","url":"https:\/\/fundaciolaninetadelsulls.org\/en\/","name":"Fundaci\u00f3 La Nineta dels Ulls","description":"","publisher":{"@id":"https:\/\/fundaciolaninetadelsulls.org\/en\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/fundaciolaninetadelsulls.org\/en\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"en-US"},{"@type":"Organization","@id":"https:\/\/fundaciolaninetadelsulls.org\/en\/#organization","name":"Fundaci\u00f3 La Nineta dels Ulls","url":"https:\/\/fundaciolaninetadelsulls.org\/en\/","logo":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/fundaciolaninetadelsulls.org\/en\/#\/schema\/logo\/image\/","url":"https:\/\/fundaciolaninetadelsulls.org\/wp-content\/uploads\/2020\/12\/logo-fundacion-la-nineta-dels-ullst.png","contentUrl":"https:\/\/fundaciolaninetadelsulls.org\/wp-content\/uploads\/2020\/12\/logo-fundacion-la-nineta-dels-ullst.png","width":1467,"height":446,"caption":"Fundaci\u00f3 La Nineta dels Ulls"},"image":{"@id":"https:\/\/fundaciolaninetadelsulls.org\/en\/#\/schema\/logo\/image\/"}},{"@type":"Person","@id":"https:\/\/fundaciolaninetadelsulls.org\/en\/#\/schema\/person\/3eccaf2a549ed72f66aa1d01ff3f5a1b","name":"admin","image":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/secure.gravatar.com\/avatar\/265f6e939194518e3bea4bd7c1f3d8536537badc12519a87515855e398051aa4?s=96&d=mm&r=g","url":"https:\/\/secure.gravatar.com\/avatar\/265f6e939194518e3bea4bd7c1f3d8536537badc12519a87515855e398051aa4?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/265f6e939194518e3bea4bd7c1f3d8536537badc12519a87515855e398051aa4?s=96&d=mm&r=g","caption":"admin"},"sameAs":["https:\/\/fundaciolaninetadelsulls.org"]}]}},"_links":{"self":[{"href":"https:\/\/fundaciolaninetadelsulls.org\/en\/wp-json\/wp\/v2\/posts\/21031","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/fundaciolaninetadelsulls.org\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/fundaciolaninetadelsulls.org\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/fundaciolaninetadelsulls.org\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/fundaciolaninetadelsulls.org\/en\/wp-json\/wp\/v2\/comments?post=21031"}],"version-history":[{"count":0,"href":"https:\/\/fundaciolaninetadelsulls.org\/en\/wp-json\/wp\/v2\/posts\/21031\/revisions"}],"wp:attachment":[{"href":"https:\/\/fundaciolaninetadelsulls.org\/en\/wp-json\/wp\/v2\/media?parent=21031"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/fundaciolaninetadelsulls.org\/en\/wp-json\/wp\/v2\/categories?post=21031"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/fundaciolaninetadelsulls.org\/en\/wp-json\/wp\/v2\/tags?post=21031"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}