{"id":17869,"date":"2022-04-13T00:00:00","date_gmt":"2022-04-13T00:00:00","guid":{"rendered":"https:\/\/fundaciolaninetadelsulls.org\/we-commemorate-world-rare-disease-day-with-a-very-important-announcement\/"},"modified":"2025-07-07T12:28:51","modified_gmt":"2025-07-07T12:28:51","slug":"we-commemorate-world-rare-disease-day-with-a-very-important-announcement","status":"publish","type":"post","link":"https:\/\/fundaciolaninetadelsulls.org\/en\/we-commemorate-world-rare-disease-day-with-a-very-important-announcement\/","title":{"rendered":"We commemorate World Rare Disease Day with a very important announcement"},"content":{"rendered":"<p>From our foundation, we are very happy to announce that, with the support of the Catalan Society of Paediatrics, the Hospital Sant Joan de D\u00e9u and the Hospital Vall d&#8217;Hebron, we have managed to register in the Parliament of Catalonia a petition to increase the frequency of paediatric retinoblastoma check-ups and include these results in the clinical history.<\/p>\n<p>This will mean a revolution in the early detection of retinoblastoma and other minority diseases with the same symptoms, such as congenital cataract and Coats disease.<\/p>\n<p>Thanks to these actions, we are making progress in the early detection of retinoblastoma, a basic pillar in the survival and preservation of children&#8217;s eyes and vision.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>From our foundation, we are very happy to announce that, with the support of the Catalan Society of Paediatrics, the Hospital Sant Joan de D\u00e9u and the Hospital Vall d&#8217;Hebron, we have managed to register in the Parliament of Catalonia a petition to increase the frequency of paediatric retinoblastoma check-ups and include these results in [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"default","ast-site-content-layout":"","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center 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