The Xalet de Prades hosted a new edition of the Meeting of Retinoblastoma Patients, Families and Expert Professionals, which this year reached its 6th edition. Once again, it brought together people who share a common journey from different perspectives, creating a space for connection, learning and shared experiences.

Throughout the meeting, families had the opportunity to share experiences, discuss concerns, learn and speak with professionals specialised in retinoblastoma, while also enjoying more relaxed moments through activities and spaces designed for families to spend time together.

Beyond the scheduled activities, one of the main strengths of this meeting is the opportunity to feel supported and connect with other families who have experienced or are experiencing similar situations. At the same time, it allows professionals to gain a closer understanding of families’ experiences, needs and concerns.

Once again, the surroundings of the Xalet de Prades provided the setting for this community gathering. It was a few days in which we learned, shared, played and, above all, shared many emotional moments. Creating spaces for connection and togetherness is also a way of strengthening our community and continuing to support families.

Fundació La Nineta dels Ulls would like to thank the Diputació de Tarragona for its collaboration and, especially, the Foundation’s team and all the organisations that helped make this 6th meeting possible: Xalet de Prades, Vichy Catalan and La Roche-Posay.

We look forward to meeting again next year to continue sharing experiences, learning together and creating new memories.

L'entrada Prades Hosts the 6th Meeting of Retinoblastoma Patients, Families and Expert Professionals (26/10/2026) ha aparegut primer a Fundació La Nineta dels Ulls.

Fundació La Nineta dels Ulls took part in the AYA Conference 2026, organised by the Catalan Institute of Oncology (ICO), Sant Joan de Déu Barcelona Hospital and the Catalan Institute of Health (ICS). The event provided a space for discussion and reflection on the challenges faced by adolescents and young adults after completing cancer treatment.

The conference brought together professionals and organisations to share experiences and reflect on the challenges that arise during this stage, when young people have to resume their personal, educational, professional and social projects after going through cancer. Beyond medical follow-up, this period requires support that is adapted to their needs and expectations.

At 4:30 p.m., the Foundation took part in the session “Foundations and Societies: The Art of Supporting Expectations, Needs and Learning”, sharing our experience and the perspective of families and young people affected by retinoblastoma.

Taking part in these spaces allows us to continue bringing the perspectives of patients and families into discussions about cancer care and to highlight the importance of supporting adolescents and young adults beyond treatment, taking into account their needs, concerns and life plans.

At the Foundation, we continue to promote partnerships and take part in dialogue spaces that help us move towards a model of care and support that is increasingly focused on people and their needs.

L'entrada Fundació La Nineta dels Ulls Takes Part in the AYA Conference 2026 (22/10/2026) ha aparegut primer a Fundació La Nineta dels Ulls.

Fundació La Nineta dels Ulls is celebrating the 6th Superhero Day, an event designed to help children discover their own superpowers and reflect on how they can contribute to building a more inclusive world.

This year’s theme, “Future Superheroes: Imagining an Inclusive World”, will invite children to take part in stories, games and activities focused on values such as empathy, respect for diversity, cooperation and teamwork.

During the event, we will travel to the magical city of Harmony, a place where everyone is welcome, listened to and valued. Through this story, participants will discover that our differences make us stronger and that every small gesture can help build a more inclusive future.

A new opportunity to share, play and discover that we all have superpowers that can help make the world a better place.

Registration and further information: Fundació La Nineta dels Ulls website

L'entrada The 6th Superhero Day is coming! (13/10/2026) ha aparegut primer a Fundació La Nineta dels Ulls.

Fundació La Nineta dels Ulls took part in the Impact Genomics Conference in Catalonia, held at Hospital de Sant Pau, an event focused on sharing knowledge and discussing advances in genomics and their impact on healthcare.

Joan Carles Castillo, Secretary of the Foundation, participated on behalf of the Spanish Federation for Rare Diseases (FEDER) as a member of the panel in Block 3 of the conference.

His participation helped bring the perspective of patients and families into the discussion, highlighting the importance of considering their needs, experiences and expectations as genomic medicine continues to advance.

Genomic medicine is opening up new opportunities in areas such as diagnosis, prevention and personalised healthcare. In this context, it is essential that the development and implementation of these new tools go hand in hand with the active participation of patients and their families.

At Fundació La Nineta dels Ulls, we remain committed to participating in forums for knowledge exchange and discussion that ensure the voices of patients are heard and contribute to more participatory, person-centred healthcare.

L'entrada The Voice of Patients and Families at the Impact Genomics Conference in Catalonia (09/10/2026) ha aparegut primer a Fundació La Nineta dels Ulls.

The European Erasmus+ project Superhero School: Imagining an Inclusive and Digital Education System Adapted to Students with Cancer, coordinated by Fundació La Nineta dels Ulls, continues to make progress in developing resources to promote a more inclusive education system adapted to the needs of children and adolescents with cancer.

One of the project’s most significant developments is the presentation of the initial results of the study on families’ educational experiences, which has already involved 275 families from Spain and Greece. Their responses are helping to identify needs, challenges and experiences related to education during cancer treatment and the return to school.

The survey remains open to encourage further participation and enrich the results of the study. These findings will provide a valuable foundation for developing educational tools and approaches that respond to the real needs of students and their families.

A New Meeting of All European Partners

This month, a new online coordination meeting was also held with the participation of all project partners: Karkinaki and Leonteios Sxoli, from Athens; Smallcodes, from Florence; RedTree, from Valencia; Escola PAX, from Tarragona; and Fundació La Nineta dels Ulls, the project coordinator.

During the meeting, the different working groups shared progress across the main areas of Superhero School: the new version of the project website, the results of the family survey, the proposals for curriculum adaptations, and the guide for Superhero Schools.

The meeting also provided an opportunity to plan the next stages of the project and coordinate the tasks of the different partners as work on the project’s outcomes continues.

With each new step, Superhero School is turning the experiences and needs of families, students and the educational community into practical resources that can help schools provide better support for children and adolescents with cancer.

Together with our European partners, we continue working towards a more inclusive and digital education system that is better prepared to support students with cancer.

L'entrada Superhero School Moves Forward with Initial Results and New Resources for Students with Cancer (07/10/2026) ha aparegut primer a Fundació La Nineta dels Ulls.

On 25 September, Fundació La Nineta dels Ulls held a new working meeting with Karkinaki (Greece), a partner organisation in the Erasmus+ project Superhero School: Imagining an Inclusive and Digital Education System Adapted to Students with Cancer, led by our Foundation.

The meeting focused on analysing the results of the survey conducted among families, an initiative designed to provide first-hand insight into their experiences, needs and challenges regarding the education of children and adolescents with cancer.

During the meeting, we worked together on how to integrate the survey findings into the development of the project, as well as how to analyse and disseminate the results. Listening to families is essential to developing resources and educational approaches that respond to real needs and help support educational continuity and the return to school following a cancer diagnosis.

This new meeting with Karkinaki represents another step towards one of the main goals of Superhero School: contributing to a more inclusive, digital education system adapted to the needs of students with cancer.

Together with our European partners, we continue working to ensure that the experiences and voices of families remain an essential part of the project.

L'entrada Families at the Heart of the European Superhero School Project (25/09/2026) ha aparegut primer a Fundació La Nineta dels Ulls.

This July, we continued making progress on the European project Superhero School: Imagining an Inclusive and Digital Education System Adapted to Students with Cancer, coordinated by Fundació La Nineta dels Ulls under the Erasmus+ programme.

On 15 July, we held a working meeting with Karkinaki (Greece), one of the project’s partner organisations. The meeting provided an opportunity to review the progress achieved since the last transnational meeting in Athens and to coordinate the next activities planned for the coming months. It also strengthened collaboration among partners as we continue developing strategies to promote a more inclusive educational environment for children and adolescents with cancer.

Later, on 29 July, we met with Smallcodes (Italy), another project partner. During the meeting, Smallcodes presented the latest update of the Superhero School website, featuring a more intuitive navigation, a clearer structure and a more user-friendly visual design. This represents another important milestone as we move closer to the public launch of the platform, which will become a valuable resource for schools, families and professionals.

These meetings are part of the project’s ongoing international coordination, ensuring steady progress in the development of innovative educational resources aimed at creating a more digital, inclusive and adaptable education system for children and young people with cancer.

Together with our European partners, we remain committed to building a school environment that is more accessible, supportive and better prepared to accompany students throughout their treatment and their return to the classroom.

L'entrada The European Superhero School Project Continues to Move Forward with New International Meetings (30/07/2026) ha aparegut primer a Fundació La Nineta dels Ulls.

This July, we were once again reminded that solidarity knows no boundaries. Several initiatives came together to support Fundació La Nineta dels Ulls and help us continue improving the lives of children with retinoblastoma and their families.

We would like to express our heartfelt thanks to IMAGINART, the student cooperative created by the sixth-grade pupils of Mare de Déu del Portal School in Batea, for their generous €150 donation. Their commitment shows that solidarity begins at an early age and that young people can make a meaningful difference in their communities.

We are also deeply grateful to the Associació Contra el Càncer de la Fatarella, whose 5th Wine Tasting and Food Pairing Charity Dinner raised €10,078.70 for several organisations and projects dedicated to cancer research and patient support. Of this amount, €1,078.70 was donated to Fundació La Nineta dels Ulls, helping us continue advancing research, early detection initiatives and family support programmes.

The fight against retinoblastoma was also highlighted through sport during the Open Padel Tamarit tournament. With the support of its main sponsor, GoMotor, the event became a charity initiative in support of our Foundation. The involvement of players, organisers and supporters demonstrated once again that sport is a powerful way to raise awareness and generate funds for childhood cancer research.

Every donation, every event and every person who chooses to get involved brings us one step closer to our goal: ensuring that every child with retinoblastoma has access to early diagnosis, the best possible treatments and the support they need throughout their journey.

Thank you to every individual, school, organisation and company that continues to stand with us. Your generosity makes our work possible and helps us create a brighter future for children affected by retinoblastoma.

L'entrada Solidarity Never Takes a Vacation: Thank You to Everyone Who Supported Our Mission This July (20/07/2026) ha aparegut primer a Fundació La Nineta dels Ulls.

This month, the Fundació La Nineta dels Ulls had the opportunity to showcase LeucoCheck, our innovative project for the early detection of retinoblastoma, through two platforms focused on technology with a social impact.

Carme Julià, President of the Foundation, took part in the final episode of the season of La Porteria, where she explained the purpose and operation of LeucoCheck, a mobile application powered by artificial intelligence that automatically detects leukocoria, one of the main warning signs of retinoblastoma.

During the interview, she highlighted the importance of early diagnosis, as it can make the difference between preserving vision, saving the eye, and, in many cases, saving a child’s life.

LeucoCheck is also featured in issue 14 of Mirades Magazine, dedicated to digital technology and human rights. In her article, Carme Julià explores the development of the application and its potential to make early diagnosis more accessible, especially in low-resource settings.

The application is currently being tested in both Catalonia and Mozambique, an essential step in validating this technology before making it widely available to healthcare professionals and families around the world.

We remain committed to harnessing technology to improve the early detection of retinoblastoma and provide more children with the opportunity for a healthier future.

L'entrada LeucoCheck Featured on La Porteria and in Mirades Magazine (06/07/2026) ha aparegut primer a Fundació La Nineta dels Ulls.

The foundation thanks El Matí de Catalunya Ràdio and Maria Climent for the opportunity to raise awareness about the reality of children and adolescents with cancer

Fundació La Nineta dels Ulls would like to express its sincere gratitude to the team behind El Matí de Catalunya Ràdio for inviting the organisation to take part in “Les Bones Causes” (Good Causes), a radio segment dedicated to highlighting social initiatives that create a positive impact in society.

This opportunity allowed the foundation to share its mission and projects with a wider audience, increasing awareness of the work it carries out to support children and adolescents with cancer, as well as their families. Through Catalunya Ràdio, the organisation was able to shed light on the challenges faced by young people affected by cancer and the importance of providing comprehensive support throughout their journey.

The foundation would also like to extend a special thank you to the writer Maria Climent for her generosity, commitment and support. Her participation helped amplify the foundation’s message and emphasised the importance of supporting organisations that work to improve the quality of life of children and young people living with cancer.

Fundació La Nineta dels Ulls recognises the essential role that media outlets play in promoting social causes and fostering public awareness. Programmes such as “Les Bones Causes” help bring the realities of non-profit organisations closer to the public and encourage solidarity and community engagement.

The full interview is available on the 3Cat platform:

Listen to the full interview on 3Cat

Fundació La Nineta dels Ulls would like to thank everyone involved in making this opportunity possible and reaffirms its commitment to continuing its work in support of children and adolescents with cancer and their families.

L'entrada Catalunya Ràdio Gives Voice to Fundació La Nineta dels Ulls Through “Les Bones Causes” (22/06/2026) ha aparegut primer a Fundació La Nineta dels Ulls.