Tarragona hosted the first transnational meeting of the Erasmus+ project “SUPERHERO SCHOOL: Imagining an Inclusive and Digital Education System Adapted to Students with Cancer”, coordinated by Fundació La Nineta dels Ulls.

The meeting brought together representatives from all partner organizations: Karkinaki (Athens, Greece), Escola PAX (Tarragona, Spain), Smallcodes (Florence, Italy), Leonteios School (Athens, Greece), and RedTree (Valencia, Spain).

During the meeting, participants had the opportunity to meet in person, exchange ideas and experiences, and move forward in planning a project aimed at developing a more inclusive and digital education system tailored to the needs of students with cancer.

The Foundation would like to give special thanks to Escola PAX for their warm welcome and excellent organization, which played a key role in the success of this first meeting by providing a collaborative and enriching working environment.

This meeting also helped strengthen the cooperation network among partner organizations and consolidate the foundations of a project with a strong transformative potential in the educational and social fields.

The next consortium meeting will take place in Athens in June, where partners will continue advancing the development of the project.

L'entrada Tarragona hosts the first transnational meeting of the Erasmus+ project SUPERHERO SCHOOL led by Fundació La Nineta dels Ulls (28/04/2026) ha aparegut primer a Fundació La Nineta dels Ulls.

Fundació La Nineta dels Ulls has successfully concluded its Sant Jordi campaign, raising over €4,300 to support its research projects and provide assistance to children with retinoblastoma and their families.

During this special celebration, roses, dragons, and the iconic Santa Jordina figures became much more than traditional symbols—they represented a collective commitment to a cause focused on advancing research, promoting early detection, and supporting children and their families.

The Foundation would like to express special thanks to all the volunteers who lovingly handcrafted the Santa Jordina figures, as well as the crocheted roses and dragons. Their dedication was essential in making this initiative possible and turning each piece into a meaningful gesture.

The Foundation also acknowledges the support of everyone who contributed by purchasing these solidarity gifts, as well as the local businesses in Batea, Bot, La Fatarella, and Gandesa that helped bring the campaign closer to the community.

Through initiatives like this, the Foundation continues to build a growing network of solidarity, turning Sant Jordi into an opportunity to give not only culture and love—but also hope.

L'entrada Fundació La Nineta dels Ulls raises over €4,300 through its Sant Jordi campaign (23/04/2026) ha aparegut primer a Fundació La Nineta dels Ulls.

Fundació La Nineta dels Ulls would like to express its gratitude to El Matí de Catalunya Ràdio for helping raise awareness of its work through the segment Les Bones Causes, a platform that brings social initiatives closer to the public.

Thanks to this collaboration, the Foundation has been able to reach more people and continue raising awareness about the importance of research, early detection of retinoblastoma, and support for children and their families.

The organization would also like to give special thanks to Alèxia Pascual, whose generosity made this participation possible, helping give a voice to the project and strengthen its social impact.

This initiative highlights the important role of the media in promoting social causes and building collective awareness around projects that aim to improve people’s lives.

You can listen to the interview here:

L'entrada Fundació La Nineta dels Ulls featured on Catalunya Ràdio with the support of Alèxia Pascual (21/04/2026) ha aparegut primer a Fundació La Nineta dels Ulls.

Fundació La Nineta dels Ulls has received a very special donation from Aenar – Miradas Mágicas, contributing €22,000 to support the liquid biopsy project for the early detection of secondary tumors in retinoblastoma patients.

This contribution represents a significant boost to a key research line aimed at improving monitoring and early detection of potential new tumors in children who have had retinoblastoma. The liquid biopsy project is an innovative approach within personalized medicine, enabling the analysis of biomarkers through non-invasive samples.

The project is currently in the sample collection and analysis phase and is in the process of expanding to hospitals outside Spain, with the goal of increasing the dataset and strengthening the validity of the results.

The Foundation highly values this collaboration, as it directly contributes to advancing research and creating new opportunities to improve patients’ quality of life.

Initiatives like this help move forward towards earlier detection, better prognosis, and more personalized care for children affected by retinoblastoma.

L'entrada Aenar – Miradas Mágicas boosts research with a €22,000 donation to Fundació La Nineta dels Ulls ha aparegut primer a Fundació La Nineta dels Ulls.

Fundació La Nineta dels Ulls has begun a key phase in the development of its health innovation project: the collection of images at Maputo General Hospital in Mozambique, with the aim of validating the prototype of its mobile application designed for the early detection of retinoblastoma.

This project, which combines technology, research, and social impact, seeks to support the early identification of this pediatric eye tumor through the analysis of images captured using mobile devices. The application is based on the detection of signs such as leukocoria (white pupillary reflex), one of the main warning indicators of the disease.

The current phase in Maputo allows the team to test the performance of the model in a real-world setting, collecting data in clinical environments that differ from those in Europe. This step is essential to ensure that the tool is robust, adaptable, and effective in low-resource settings, where early detection can have a particularly significant impact on children’s survival and quality of life.

In addition to technical validation, this phase also helps establish collaborations with local medical teams and strengthens the international scope of the project, consolidating a cooperative model that contributes to advancing the fight against retinoblastoma globally.

L'entrada Fundació La Nineta dels Ulls begins image collection at Maputo General Hospital to validate its mobile app prototype for early retinoblastoma detection (24/03/2026) ha aparegut primer a Fundació La Nineta dels Ulls.

We would like to thank Elisabet Carnicé for giving visibility to the Fundació La Nineta dels Ulls within the Les Bones Causes segment of El Matí de Catalunya Ràdio.

In this radio segment, the communicator shared a very relevant milestone from the Foundation’s projects: the start of image capture at the General Hospital of Maputo (Mozambique). This step is key to validating the current prototype of the mobile application being developed for the early detection of retinoblastoma and other eye diseases.

This progress represents an important advancement in building an accessible and innovative tool that can help improve early diagnosis, especially in contexts with limited healthcare resources.

International collaboration and the use of technology remain fundamental pillars in the fight against retinoblastoma and in supporting children and their families.

You can listen to the segment at the following link:
https://www.3cat.cat/3cat/elisabet-carnice-amb-la-fundacio-la-nineta-dels-ulls/audio/1274924/

L'entrada Communicator Elisabet Carnicé Highlights the Progress of Fundació La Nineta dels Ulls on Catalunya Ràdio (23/03/2026) ha aparegut primer a Fundació La Nineta dels Ulls.

Fundació La Nineta dels Ulls continues to move forward in the development of the Erasmus+ project SUPERHERO SCHOOL: Imagining an Inclusive and Digital Education System Adapted to Students with Cancer, through new working meetings with its international partners.

Recently, a meeting was held with the Greek organization Karkinaki, one of the project partners, where key ideas to be jointly developed in the coming months were shared. This meeting helped strengthen coordination and consolidate the project’s foundations.

In addition, meetings of the different working groups have also begun, marking an important step in the operational launch of the project. This innovative initiative focuses on prevention, detection, intervention, and monitoring to promote inclusion, educational success, and recovery for students with cancer.

In this context, together with Smallcodes, work has started on designing the project’s website and the future SUPERHERO SCHOOL platform. At the same time, with Escola PAX and Leonteios School, the tasks to be carried out collaboratively have been planned.

Partners are already looking forward to meeting again in April in Tarragona for the next in-person session.

L'entrada Progress in the meetings of the European project SUPERHERO SCHOOL (03/03/2026) ha aparegut primer a Fundació La Nineta dels Ulls.

The 19th edition of World Rare Disease Day in Catalonia, under the slogan “More than you can imagine”, was held on 26 February, focusing on patients and their families, beyond diagnosis and treatment. The event was organized by the organizing committee, which included Fundació La Nineta dels Ulls, aiming to create a space where genuine patient participation in healthcare decisions could impact daily life and health policy.

Key topics discussed during the event:

• Updates from the Ministry on rare diseases and patient participation.

• The Royal Decree regulating patient participation: implications and practical application.

• Impact on health technology assessment and real-life decision-making.

• Updates on the #NationalStrategy for #RareDiseases.

• First-hand patient testimonies: from data to personal experience.

The event was hosted by Elisabet Carnicé, offering reflections and debate on health equity and research, as well as experiences that helped promote fairer and more inclusive decisions.

Objectives achieved during the event:
— Realities were made visible, reducing stigma around rare diseases.
— Patients’ experience and knowledge were shared to guide better healthcare decisions.

The event was a space of generosity, perseverance, and achievement, where the stories of patients and their families gave meaning to World Rare Disease Day.

L'entrada The 19th World Rare Disease Day in Catalonia was successfully held (26/02/2026) ha aparegut primer a Fundació La Nineta dels Ulls.

We want to give a big THANK YOU to El Matí de Catalunya Ràdio for helping us raise awareness of our work by giving us a voice in the “Les Bones Causes” segment.

Their platform has allowed us to reach more people, raise awareness about retinoblastoma, and make visible the work we do at Fundació La Nineta dels Ulls in research, family support, and early detection. Being able to share our project on a leading media outlet is invaluable.

We also want to give a very special thanks to Joan Turu for his generosity and for agreeing to give us a voice on this program. His involvement and dedication inspire us and help us continue working with even more commitment and energy.

You can listen to the full interview here:
https://www.3cat.cat/3cat/joan-turu-amb-la-fundacio-la-nineta-dels-ulls/audio/1271983/

Thanks to everyone who helps us grow this cause and be part of this journey.

L'entrada Fundació La Nineta dels Ulls featured on El Matí de Catalunya Ràdio in the “Les Bones Causes” segment (25/02/2026) ha aparegut primer a Fundació La Nineta dels Ulls.

Fundació La Nineta dels Ulls presents new accessories for the “Nixi and Retinoblastoma” plush toy, a project created to support children with retinoblastoma throughout their medical journey.

One year ago, this initiative was launched with the aim of providing an emotional support tool for children facing diagnoses, treatments, or surgical procedures related to retinoblastoma. The Nixi plush has become a therapeutic resource that helps explain, understand, and normalise what many children experience during their treatment process.

“Nixi and Retinoblastoma” was born from a real need identified by Fundació La Nineta dels Ulls, which also proposed adding these new accessories to the plush toy: pieces that simulate ocular prostheses.

Thanks to a simple system using velcro and stickers, children can play at placing a prosthesis on their plush toy. This symbolic gesture transforms fear into play, facilitates understanding of the medical process, and encourages acceptance — turning play into a powerful tool for emotional support.

With this expansion, the Foundation reinforces its commitment to comprehensive family support and to developing innovative resources that help children experience their journey with greater confidence, security, and emotional wellbeing.

L'entrada New accessories for the “Nixi and Retinoblastoma” plush toy (05/02/2026) ha aparegut primer a Fundació La Nineta dels Ulls.